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Showing posts with the label Encephalocele

A's Update 2 (12/24/13) - Next Surgery Planned

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CHRISTMAS EVE! It's a little surreal to think that just one year ago we were entering another Christmas with complete uncertainty when we would be able to start celebrating Christmas with a child of our own.  Yet, here we are, headed into the very next one with the most perfect child we could have ever dreamed of having: A few things have changed since the last update.  Nothing dramatic but we've nailed down an important date so that's the main reason for this update. February 5th That's it. THE day.  Abriana is scheduled to have her facial repair surgery that day and her parents couldn't possibly be experiencing a greater level of mixed emotions about it.  Sure, we all agree 100% that this is an essential surgery for her.  However, no matter how many times we tell ourselves that we've selected the absolute best possible neurosurgeon and the best possible plastic surgeon for the job and no matter how many times we tell ourselves she NEEDS this ...

A's Update 1 (11/7/13) - One Surgery Down

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Alright so I figured I'd finally carve out some time for a broader update for everyone since the scope of those following Abriana's story is far greater then I can possibly fathom (as indicated previously). First off I give you one of my favorite pictures.  This is Abriana holding THE dental floss.  For those who find this incredibly strange I encourage you to head back to this post where I explain the dental floss :-) The Birth Week So the last entry I had was my thank you note to everyone just a few days before we went to the hospital for our c-section.  We were scheduled for a Friday morning C-section.  So Thursday night we decided to spoil ourselves a little and head over to St. Pete and get a room in a really nice hotel overlooking the water and have a relaxing evening as our childless era came to an end.  This was an amazing idea.  The hotel was perfect, the rooftop restaurant was fantastic, the food was insane, the view was gorgeous, and...

Dental Floss Part 4 - The Diagnosis

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Frontal Encephalocele ------------------------------------ This is part 4 of my blog series on the road to having our child Introduction:  Right Here Part 1 can be found:  Right Here Part 2 can be found:  Right Here Part 3 can be found:  Right Here Part 4: *YOU ARE HERE* Part 5 can be found:  Right Here ------------------------------------- So following the doctors advice I got in the car and rushed to the doctors office as fast as I safely could.  To be perfectly honest I don't recall parts of the trip because his words were just banging echo's through my mind "brain matter leaking from her head."  "It certainly is rather strange."  I had no time for Google research and in hindsight I am quite glad I did not have that time because there are some key distinctions I had yet to learn to frame our case versus a lot of the cases out there.  I was also still in shock that I had decided not to go with Margaret to the appointment, so for ...