A's Update 3 (1/29/14): Surgery Details
So yesterday we got more of the "nitty gritty" from the plastic surgeon on how this surgery will be going down (for those recently having our story shared with you you can do some background reading by starting at the beginning of our story CLICKING HERE ). "How do you fix this?" So to answer that I offer a quick refresher on the issue. An "Encephalocele" is a neural tube defect in which as the skull was forming in utero pieces of the skull failed to fuse together, in A's case, right above her nose bone. This is one of a couple major "fuse points". Therefore her skull was left with a hole and as the rest of her brain started forming it started pushing through the hole. Your brain also has pockets of CSF (Cerebralspinal Fluid) to help "pad" your brain. This hole also allowed CSF fluid to leak into the space and the combination of pushed brain matter (which becomes dysplastic, non-functioning, upon being squeezed through t